I Know You Mean Well But…
It's hard to believe that next week will be 1 Year since I started my second cycle of chemotherapy...March 2nd to be exact. I am so grateful that, with the exception of a few tough weeks along the way, I have been feeling really great. My doctors are reluctant to give me an end date and I have decided that I am not going to ask any more. I want to continue for as long as they thing is necessary and I don't want my constant questioning regarding the end date to imply that I am not comfortable with continuing the regimen. If it comes to a point that I feel like I need to stop then I will let my doctors know but I want to do all I can to get rid of this cancer so I am signed up for the long haul.
As many of you know, I have been dabbling with writing a fun "cocktail-like" book about all of the STUPID, RIDICULOUS, NAIVE, ANNOYING things people say to you when you are dealing with cancer. The working title of the book is "I Know You Mean Well But..." because I know that no one ever means to say anything offensive. The book is a light-hearted humorous attempt to point out things that will be appreciated by cancer patients and gestures and comments that are anything but appreciated. I am purposely not using people's names in the book because I want everyone who reads it to see themselves in the stories. I realize that I probably did so many things that were so annoying and not helpful before I had to deal with the situation myself. So, this book is to teach everyone how to be helpful...and to have a good laugh! And to all of my friends who have told me "I'm not saying anything because I am scared I will be in the book", you'll be happy to know that I will also be highlighting good behavior. So, keep talking :)
Over the past 3 years, I have accumulated about 50 stories of "bad behavior". They range from the glaringly obvious:
- "You're not going to die, are you?"
- "My friend's, brother's sister's aunt had cancer and she had X symptom so you should watch out"
- "You had surgery during Christmas week and everything went OK? Wow, you're lucky because everyone knows none of the good surgeons work that week."
- "I thought Memorial Sloan-Kettering Cancer Center only accepted patients that were going to die."
- "If there's anything I can do to help, please let me know" (I have a lot on my mind already, please don't give me the extra burden of finding something for you to do for me...just do something and I will appreciate it regardless)
- "You should really do X...." (advice can range from eating oatmeal, to taking Vitamin C to getting accupuncture to taking green tea enemas...you'd be amazed what people have recommended to me. You can make a suggestion but don't push it on me.)
- "You're going to be OK, right?" (don't remind me of the odds and mysterious future of my illness...and if I'm not going to be OK, do I really want to talk about it?)